- January 29 the State of Connecticut held a Hearing On
Lyme Disease. One of the main issues Attorney General Blumenthal addressed
was misdiagnoses. In my other articles I've mentioned many times how Lyme
Disease is being misdiagnosed as Multiple Sclerosis, ADD, Chronic Fatigue
Syndrome, Fibromyalgia, ALS, Lupus, etc.
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- We are looking further into the M.S /Lyme connection
which is apparently being covered up. We need more stories of people who
either were once diagnosed with Lyme and then were later told that they
had Multiple Sclerosis or Multiple Sclerosis patients who later found out
they really had Lyme Disease.
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- One of the testifiers at the Hearing was a woman who
was misdiagnosed for 10 years with Multiple Sclerosis. She lost a child
under a year old to what appears to have been congenital lyme disease,
acquired from the mother in utero. She recently found out that her hospital
records from 10 years ago stated that when her spinal fluid and blood was
tested for lyme, that it was positive. The hospital retested these fluids
without telling her she ever tested positive for lyme. Supposedly the second
time the fluids were tested, she was negative and they labeled her with
M.S. She did have lesions on the brain but lyme disease can also cause
these lesions.
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- This woman has contacted other M.S. patients ...some
of who are now on antibiotics and improving. She wanted to speak to the
Multiple Sclerosis Society concerning this discovery , however, they are
not interested!
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- The tests for lyme disease are extremely inaccurate and
therefore cannot be used to rule out lyme disease. The diagnoses of lyme
MUST be based on clinical history and symptoms. The Center For Disease
Control states that their diagnostic criteria concerning the Western Blot,
is ONLY to be used for surveillance and not for diagnoses. The CDC also
attended the Connecticut hearing. When first invited, the NIH the CDC and
Yale , all refused to attend. Pressure was placed on them by our congressmen
and the CDC and the NIH did end up sending representatives. Our Attorney
General asked the CDC why our doctors were using the very restrictive CDC
criteria to diagnose lyme when supposedly the CDC advises against this.
The CDC really didn't have any good answer. Attorney General Blumenthal
then strongly suggested that the CDC send a warning or special notice to
all doctors NOT to use their restrictive criteria to diagnose lyme. The
practice of using the CDC criteria has caused much senseless suffering
and misdiagnoses.
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- If anyone has anything at all they would like to share
with me concerning this issue, please e-mail me.
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- Thankyou
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- Marjorie Tietjen
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